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Using My Stroke Guide


 How do I contact the Stroke Association? 

If you have a question about stroke, you can contact the Stroke Association helpline on 0303 3033 100 or by sending the helpline an email. For technical advice and help using My Stroke Guide, please contact us at the dedicated My Stroke Guide Enquiry Line.

 How do I find information on a topic? 

Use the 'Advice and information' button on the homepage. This is the big purple button underneath the blue 'My profile' box. When you have pressed the ‘Advice and information’ button you will see that the topics have been split into 'What is stroke?', 'Physical', 'Emotional', 'Practical' and 'Aphasia and Communication'. Click on the one relevant to your topic. For example, if you want to know about memory and concentration, you would click on ‘Physical’ and then ‘Memory’. In here you will find an overview, several films and lots of advice and tips, as well as useful websites and apps to help you.

 Why are 'Apps' listed on here? 

On My Stroke Guide we have listed some apps that people with stroke have told us that they have found:

  • helpful
  • easy to use
  • easy to understand
  • cost effective for the support given.

These will help you get started. It is important to find the right app for you and your recovery needs.

We also show screenshots for each one so you can see inside the app before you download.

There are other places where you can find health apps:

  • MyTherappy is a health app review website that has been developed by the NHS, clinicians and patients to help others who have had a stroke or brain injury.
  • The Aphasia Software Finder, created by the Tavistock Trust, is a website that has information on apps and software programs to help people with aphasia.

 Why can't I see the content that I want? 

My Stroke Guide is constantly updated and we are always adding new advice and information pages, and videos. In addition, there is the Information for family and friends which does not automatically appear to users registered as stroke survivors.

If there is a particular issue that you want to find out more about, you can write about it in the forum or send a message to the Enquiry Line to let us know. We look forward to hearing your suggestions.

 Where does the information in My Stroke Guide come from? 

The information in 'Advice and information' comes from our own Stroke Association factsheets and other trustworthy sources. We check the information in our videos as far as we can, to make sure that it is correct. If you have any questions about the sources we use and how we check them please contact us.

 I remember seeing an article last time I was here, but now I can't find it? 

On the purple bar across the top of the page, there is a magnifying glass icon . You can use this to search My Stroke Guide and find the information that you need.

 How do I find out about my local stroke club? 

From the homepage, click on 'Local support'. Type in your postcode to find all the Stroke Association services in your local area, including support services and stroke clubs.

 What are 'My achievements' and how do I get them? 

From the homepage, click on 'My achievements' to learn details of how to gain extra awards. Please note that these are currently only available to users registered as stroke survivors.

 How do I turn subtitles on when watching the videos? 

At the bottom of the video screen, just after the play bar and next to the cog logo on the bottom right, there is a grey rectangle with the letters CC in it. Click on this and select ‘English CC’.

 How do I save a page so that I can find it easily later? 

On the purple bar across the top of the page, there is a star icon. Click on this when you are on a page you want to save as a favourite. When you want to locate all of your saved pages, navigate to the homepage and click on 'My favourites' near the bottom of the page.

 How do I send a message? 

From the homepage, either click on the 'Notifications' box, or go to 'My social' and then click on 'My messages'. Once you are in the messages screen, select 'Write new message'. Then type in who you want to send a message to, enter a subject and write your message. Finally, press 'Send'.

 How do I see my messages? 

As above, from the homepage, either click on the 'Notifications' box, or go to 'My social' and then click on 'My messages'.

 What is the forum for? 

The forum is a place for all My Stroke Guide users to talk about anything and everything. On the forums, you can talk to other stroke survivors and it is a friendly place to share advice and tips.

 How do I use the forum? 

From the homepage click on the ‘My social’ button. Then click on ‘Forums’ along the top. You can either search for something specific or browse the discussion boards. If you want to write something, the reply box is at the bottom of the discussion.

 What happens when I follow a forum topic? 

If you click on 'Follow' on a forum you will receive emails when another My Stroke Guide user writes something new in the forum. To make sure you get these emails, check that you have consented to being contacted using the email address on your profile. Don't worry, your email address won't be visible to other users, only you will see it.

 What are the house rules for the forums? 

To ensure that the forums are an enjoyable and informative place to be for everyone, please ensure that your posts don't contain any of the following: 

  •  Aggressive or bullying behaviour towards our staff, volunteers or other contributors. 

  •  Discriminative language on the basis of race, age, gender identity, sexual orientation, ethnicity, religion, disability or political beliefs. 

  •  Abusive, hateful, derogatory or obscene language. 

  •  Third party solicitations or advertisements including chain letters or pyramid schemes. 

  •  Antisocial, disruptive, or destructive acts, including “flaming,” “spamming,” “flooding,” “trolling,” and “griefing” as those terms are commonly understood and used on the Internet.

  • Comments suggesting or encouraging illegal activity. 

  • Don't infringe others' intellectual property rights by posting material you don't have permission to use.

You are responsible for the material you post. By using the forums, you are also agreeing to our privacy policy and terms and conditions.

 What are the groups for? 

The groups in the 'My social' area are for users with shared interests. You can join as many groups as you want or request to set up a new one.

I have a sight impairment, how can I see My Stroke Guide better? 

In the bottom right corner, there are three A’s in coloured circles. Clicking on one of these will change the colours to suit your visual needs.

I'm worried about privacy on my device, how can I protect my login? 

If you are using a public or shared computer, make sure you log out after using My Stroke Guide. Also, make sure that "keep me logged in" isn't ticked.
For more information, please refer to our privacy policy.

 My Stroke Guide looks strange on my computer, how can I fix this? 

My Stroke Guide has been designed to work best on Google Chrome rather than Internet Explorer. If you are looking at My Stroke Guide having clicked on this icon 

 try downloading Chrome using this link. Then if you use this icon 

 to look at My Stroke Guide the site will work much better.

 My Stroke Guide looks strange on my iPhone or iPad, how can I fix this? 

It is likely that if My Stroke Guide is not displaying properly, that your version of iOS isn't up to date. Try updating your version of iOS to resolve this problem.


Stroke Helpline

   0303 3033 100