Information and support | My Stroke Guide

Stroke and Coronavirus (COVID-19)

I'm a stroke survivor, what does Coronavirus (COVID-19) mean for me? 

Stroke survivors have been telling us that they are worried about Coronavirus (COVID-19). Most people who get the infection will recover quickly, but some people can have more severe symptoms, including pneumonia. 

We have put together information on stroke and Coronavirus (COVID-19) on our Stroke Association website where easy read documents are also available. This was created in partnership with NHS England and will be updated regularly.

The web page is designed to help you understand what you can do to stay healthy. We provide links to the main official sources of guidance. We’re unable to provide medical advice about coronavirus.

How to put on a mask with one hand

The Stroke Association can support you with information and advice on stroke. If you need medical advice, please visit the NHS Coronavirus webpage.

Our Helpline is also here on 0303 3033 100 if you need someone to talk to. To find out what we’re doing as an organisation, including pausing all our events and groups in the community, you can read this note from our Chief Executive Juliet Bouverie. 

Resources

Stroke Publications

Find detailed health information on a range of stroke-related topics. Our publications provide accurate and accessible health information for stroke survivors, carers, friends and family. 

We publish our information about stroke in a range of European and South Asian languages. Available in an accessible format including audio, braille and large print. 

If you have trouble understanding speech, it can also be hard to read. For more advice about communication support, call our Helpline on 0303 3033100 or email helpline@stroke.org.uk

Blog

Sharing our stories is now more important than ever, so why not start with our new blog series written by people affected by stroke, sharing their experiences of social distancing and the new world order.

Stroke News

Stroke News offers loads of helpful information and advice on how to enjoy life after a stroke.

Each edition includes details on the latest stroke research as well as compelling case studies from a number of stroke survivors. Have a read about former IT teacher, Rick Heins' experience of My Stroke Guide here.

Make sure you don't miss a magazine. Subscribe to our future editions available in print, on audio CD, or via email.

To change your subscription preferences or to unsubscribe, please contact  strokenews@stroke.org.uk or call 01604 687 721.

Stroke Apps

We know that it might not be as easy for you to get the help you need at this time.

The NHS have recommended a list of apps that are suitable for those who have had a stroke and have been found to aid rehabilitation. The list of apps covers many different topics, from eating to exercise.

Webinars

What's next for My Stroke Guide? (UKSA webinar took place on 8th July 2020)

The UK Stroke Assembly is a chance for all to take part and have a say about future campaigns, talk about ongoing work and developments and provides a great space to open up a conversation.

UK Stroke Assembly 2020 Virual Event means you can now watch the entire event through online webinars. The My Stroke Guide team got together for a 30-minute webinar, where we show you a short tour of My Stroke Guide, talk about ongoing work, new developments and do a Q&A at the end. 

To watch the webinar please click the play button below. 

Videos

My Stroke Guide YouTube channel 

You can now watch our videos on a range of topics such as mental health, medication and exercise after stroke. We hope that watching these videos help you in your recovery journey. 

Stroke Specific Exercise Video Programme

Being active is a great way to improve overall health throughout your recovery and later on in life. It can help improve mood and increase energy levels. It can also help reduce the risk of another stroke.

We’ve teamed up with the charity A Stroke of Luck, who specialise in exercise-based recovery for stroke survivors, to produce a stroke-specific exercise programme of short videos to help you be more active at home. There are 12 videos in total, which you can follow at a pace that suits you, whether that’s week-by-week or day-by-day.

Aphasia Suite

Aphasia-friendly guides

It is important that we stay connected with our loved ones, and with video calling it couldn't be easier. 

We now have aphasia-friendly guides available on how to use Zoom, WhatsApp and Skype.

You can download the instructions below on how to use different versions.

An introduction to video calling with people with aphasia - a full overview

Zoom

WhatsApp

Skype

Getting online for people with aphasia

You can watch a video of each section in the playlist below. To start watching, click the play button.

If you want to watch other videos in the playlist please click the icon with the three lines in the right-hand corner.

This guide is for people with aphasia.

This guide is also for your family and friends.

It has information about getting online and using technology.

You can get online even if you have never done this before.

Illustration of a group of people, one is holding a sign that says we have aphasia

 

This guide has 14 sections.

You do not need to use all sections.

Take your time and work at your own pace.

Practise with a family member or friend.

 

Illustration of two people looking at a laptop

   

At the start of each section there is an ‘In this section’.

This tells you what is in the section.

At the end of some of the sections you will see ‘Challenge yourself’.

These are tasks to practise the new skills.

 

Cover of the guide Getting online for people with aphasia 

Get the full guide here

You can also open each section: