You can share your experience to improve stroke research

Submitted by Alex on Wed, 04/14/2021 - 09:57

People affected by stroke are experts in what it is like to experience and live with stroke. If you’re a stroke survivor, your loved one has had a stroke, or you’ve cared for someone who has had a stroke you can join our Stroke Voices in Research group. The group helps make decisions that affect research, and how research is done.

You can have your say for stroke

Submitted by Rosie.Brown on Fri, 04/09/2021 - 12:52

During March to August 2020, over 1400 people told us their questions about stroke. We had about 4000 questions, which were grouped to make a much shorter list by bringing together those that are the same 

You can look at the list of unanswered questions and tell us which can make the biggest difference to the lives of people affected by stroke. This can help focus research to answer the questions that can make the biggest change.

The new Digital Health Assistant (DHA)

Submitted by Rosie.Brown on Wed, 03/24/2021 - 09:58

We would like DHA to be part of a new suite of products for My Stroke Guide users who would like more health information that is specific to them. We've involved various individuals across the organisation to help us build DHA, and we are now ready to begin testing! 

We are looking for volunteers to test out DHA including the registration process and accessiblity of the design and language.

We will ask you to review some of the emails and provide feedback about your experience. Testing is set to begin in March and will run for 8-12 weeks.