Tell me more | My Stroke Guide

What is My Stroke Guide?

If you have been affected by stroke, My Stroke Guide can help. 

We have worked alongside stroke survivors and their family to create a website for online stroke support.  

My Stroke Guide provides you with:

  • an online forum to share experiences and ask questions 
  • easy-to-read information about stroke and its effects
  • a library of over 200 videos, offering advice about stroke and recovery

Practical advice and tips to help understand stroke and its effects is available 24 hours a day, 7 days a week.

My Stroke Guide works on all devices that have access to the internet: computers, tablets, laptops and smartphones. 

 Register here 

Claire's story

“My Stroke Guide made me realise there’s life beyond stroke.”

- Claire, stroke survivor 

In 2010, 19-year-old Claire collapsed on the underground. The doctors thought she was suffering from anxiety, but they later found out she’d had two devastating strokes. Claire’s vision, hearing and speech were affected, and she experienced difficulties with coordination and mobility, which meant she had to use a wheelchair. 

“I was scared that I was going to die,” remembers Claire. “And all the things I loved, like playing football and plans of becoming a teacher, had been snatched from me. I felt like I was never going to have a purpose again.”

When Claire was discharged, the rehab stopped and she was left to cope with the devastating emotional impact of stroke, as well as the physical disability.  Three years after her stroke, Claire discovered My Stroke Guide.

“I could access support and information about stroke, wherever and whenever I needed to. Reading comments from other people who were feeling the same as me helped me to realise that I wasn’t the only one.

I would recommend it to carers too. I couldn't express how I was feeling to my mum, so I told her to go on the My Social forum. She read the messages from stroke survivors and carers and that helped her to understand what I was going through.” Claire also used My Stroke Guide to access the information and advice to help her understand more about the effects of stroke. “I enjoyed the videos because they gave me an overview of the facts. For example, when I was extremely tired for no reason, I searched My Stroke Guide and found a video that explained that it was completely natural. This has helped me to move forwards.” 

Now working as a Community Stroke Support Assistant, Claire regularly demonstrates My Stroke Guide to both stroke survivors and carers. “Having access to the information and videos gives them confidence, and the forum allows them to talk to other people who’re going through similar struggles, helping them to feel less isolated.”

Bill's story

“I always wanted to get back to driving again. My Stroke Guide helped me do just that.”

- Bill, stroke survivor 

Bill Cowe had only been retired for two weeks when he had a stroke in 2017. The 52-year-old former Police Officer had just returned from dropping his son off at school when he began to feel extremely tired.  

“I went to bed to get a couple of hours sleep to see how I felt,” recalls Bill. “When I got up, half my body was affected on the right-hand side. I’d had two strokes, which affected both sides of my body from the neck downwards. I also couldn’t swallow or speak – I harboured some pretty dark thoughts at the time.”

Bill was keen to do all he could to adapt to life after stroke when he got home from hospital. “I used My Stroke Guide as part of my general recovery and it helped me to make sense of my stroke. I used to be a Class 1 Pursuit Driver in the police, but after the stroke, I learnt that I had to re-sit my test again. I looked on the My Stroke Guide section about driving, which gave me advice about what I needed to do. That pointed me in the direction of disability centres, and the subsequent assessments I did to pass my driving test. I am driving now, so that had a massive impact on me.”

“Thanks to My Stroke Guide, Bill feels much more positive about his recovery.” 

- Andrea, carer

Bill also found that My Social offered him the opportunity to share experiences with other stroke survivors online. “My Stroke Guide gave me reassurance. I would go online and check things out, and I would speak to people. Being able to communicate and exchange messages with other stroke survivors about what they’re going through on a daily basis had a really positive effect on me.”

Today, Bill works as a Stroke Ambassador for the Stroke Association, and now over a year after his stroke, he continues to see improvements in his mobility.

Camille's story

“I use My Stroke Guide to demonstrate there is life after stroke.

- Camille, healthcare professional

Camille is a Clinical Psychologist in Neurorehabilitation at Croydon University Hospital. She has many years’ experience working in acute and community stroke rehabilitation. 

Since coming across My Stroke Guide, Camille has recognised how it can support staff within the stroke ward, and bring great benefit to stroke survivors throughout their recovery.

“Various therapists, including those on the ward and in the community, are now introducing My Stroke Guide to their patients,” says Camille. “It can be used to provide information about common issues after stroke and sources of support. I feel the interactive format really empowers stroke survivors and their families to take control of their recovery.”

Camille believes that My Stroke Guide could play an important role in the ward as it continues to evolve. “During a current research project the university are participating in, current and former patients have been involved in redesigning the ward. There has been great interest in drop-in sessions for both patients and families, where My Stroke Guide can be incorporated.”

As a new and innovative way to support both the stroke team and stroke survivors, Camille sees My Stroke Guide as an opportunity to demonstrate that there is life beyond stroke.

How to use My Stroke Guide

We have a number of user guides, tutorial videos and a list of frequently-asked questions available to help you use My Stroke Guide.

My Stroke Guide and The Information Standard

After a stroke you need accurate and trustworthy information to help you understand what has happened and to support you in making informed choices for your future.

The Stroke Association is accredited by the Information Standard, an important quality mark to reassure you that all our health and social care information is high quality and based on proper evidence.

This means that we review the information we provide regularly to ensure that the content is up-to-date and accurate.

All our publications are referenced so you can see the sources we use. We also listen to the feedback you give us and aim to constantly improve.