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What is My Stroke Guide?

My Stroke Guide is a self-management tool to support people who have been affected by stroke.

Its been designed by the Stroke Association, working closely with stroke survivors and family members who have been involved in every step of its development. This is so that their needs are at the heart of what My Stroke Guide delivers.

 

The Stroke Association created My Stroke Guide to help ensure that stroke survivors are never alone in their recovery.

It provides the practical tools to help stroke survivors understand stroke and deal with its effects alongside peer support to combat feelings of isolation.

Most importantly, My Stroke Guide is available online, 24 hours a day.

My Stroke Guide’s key features are:

  • Information about the effects of stroke and hints and tips about how to deal with them.

  • Peer-to-peer support, including an extensive video library and an online forum.

  • Advice and signposting on the various issues people can face after stroke.

We have a number of user guides to help you use My Stroke Guide. You can download and print:

The video to the right also provides a walkthrough of My Stroke Guide.

Digital Stroke Support Service - information for commissioners

Our Digital Stroke Support Service is available to stroke survivors, their family or friends who are digitally excluded to help them engage with My Stroke Guide and healthcare technology in person.

The Digital Stroke Support Service will offer the following:

  • digital skills workshops
  • face-to-face set up and induction
  • help creating an account on My Stroke Guide
  • carer support

“It has let me talk to other people that have had a stroke. I eventually want to set up a group for people who want to go on holiday and share a career. I enjoy watching the videos of other people that have had a stroke. It helps me to realise I’m not on my own.”

- Prakash, a former Digital Stroke Support Service client

Click here to find out more about our Digital Stroke Support Service and watch a video.

If you are a commissioner, and are interested in learning more about the Digital Stroke Support Service, please email: services@stroke.org.uk

My Stroke Guide and The Information Standard

After a stroke you need accurate and trustworthy information to help you understand what has happened and to support you in making informed choices for your future.

The Stroke Association is accredited by the Information Standard, an important quality mark to reassure you that all our health and social care information is high quality and based on proper evidence.

This means that we review the information we provide regularly to ensure that the content is up-to-date and accurate.

All our publications are referenced so you can see the sources we use. We also listen to the feedback you give us and aim to constantly improve.

If you would like to know more about our accreditation, you can take a look at the Information Standard website or contact us on mystrokeguide@stroke.org.uk.

More questions?

For technical support and information about My Stroke Guide call the Enquiry Line on 0300 222 5707 or email us mystrokeguide@stroke.org.uk. 

For information about stroke, go to the Stroke Association website

The Stroke Association would like to thank Nominet Trust for their generous grant originally enabling us to develop the content for the My Stroke Guide self-management tool.